DementiaRoadmap

Promoting living well with dementia across Scotland

Supporting well

Receiving a diagnosis of a dementia can be overwhelming. There are local and national support groups and organisations available to provide support and information. When someone living in Scotland is diagnosed with dementia, they are entitled to one year post diagnostic support (PDS). The person who has given you your diagnosis will organise this for you.

When someone is diagnosed with a dementia, they should be supported to remain as independent as possible, and to continue to enjoy their usual activities.

It is important to support the person with a dementia to make arrangements for the future including future care options. They may wish to prepare for a time when another person may need to help with their affairs.

Information
Services

Information

  • Trauma Informed ApproachIt is important to acknowledge the relationship between trauma and dementia and the ways trauma might impact someone living with dementia. The National Trauma Transformation Programme provides a range of resources and we would like to highlight two in particular: The first one is Opening ...
  • Timely Diagnosis of DementiaTimely Diagnosis of Dementia -With a timely diagnosis, treatment and support, many people can continue to lead active and fulfilled lives.
  • Let’s Talk About Dementia and Down’s SyndromeLet’s Talk About Dementia and Down's Syndrome - An easy read booklet about Dementia for adults with Down’s Syndrome
  • Dementia UK – A Stay In HospitalThis resource gives information on preparing for a hospital stay.
  • Help if you are a CarerThis website link provides information on the support you can get if you are an unpaid carer in Scotland.
  • Getting a Mobility CarIf you receive a benefit because you have a disability or illness that makes it hard for you to get around, you can use it to pay for a vehicle from a charity called Motability.
  • Future Healthcare PlanningUseful information from Age Scotland on planning for future healthcare needs
  • A Stay in Hospital – Top TipsThis page provides some useful information for anyone with dementia going into hospital to make the visit more comfortable.
  • Keeping Safe and SecureInformation on keeping safe inside and outside the home from Alzheimer Scotland
  • Useful Products – Alzheimer ScotlandTrusted and impartial advice on useful products for people living with dementia.
  • Keeping Safe – Everyday Living AdviceA range of topics on everyday life while living with dementia from Alzheimer Scotland
  • Rare Dementia SupportRare Dementia Support offer a range of support services for people living with affected by rare dementia diagnoses.
  • Physical Activity and Sleep – Lancet ReportEvidence from The Lancet to show exercise and good-quality sleep can reduce risk of developing dementia.
  • Physical Activity and the Risk of DementiaEvidence to show exercise can reduce risk of developing dementia.
  • Building Healthy Habits – Age ScotlandAge Scotland offers some useful advice on how to build healthy habits for later in life to keep you well for longer.
  • Alcohol and Dementia – The LancetAlcohol and Dementia - The Lancet - This study from The Lancet shows evidence of excessive alcohol use and an increased risk of dementia.
  • Alcohol and Dementia – Alzheimer ScotlandInformation from Alzheimer Scotland about the link between alcohol use and dementia
  • Smoking and Dementia – Alzheimer ScotlandInformation about the link between smoking and dementia from Alzheimer Scotland
  • Smoking and Dementia – ASHSmoking and Dementia - ASH - Information about the link between smoking and dementia
  • Report on Modifiable Risk FactorsThe Lancet Report listing the 12 modifiable risk factors for dementia.
  • Cancer and DementiaCancer and Dementia - This link provides useful information and advice for anyone affected by dementia and cancer, as provided by Macmillan
  • SIGN GuidelinesThe guideline covers: the identification and diagnosis of dementia, investigative procedures, post-diagnostic support, non-pharmacological distressed behaviours, grief and dementia, the changing needs of people with dementia, and palliative approaches.
  • Driving and DementiaA diagnosis of dementia does not automatically mean you need to stop driving and many people with dementia are able to continue driving for some time after their diagnosis. There are steps you can take to reduce any risks with driving. You need to inform the DVLA and your insurance following a diagnosis of dementia and further tests can be requested to establish your safety.
  • Stress and DementiaInformation about the link between stress and dementia
  • Dementia ToolkitDementia Toolkit for assessment, diagnosis, care and support for people with dementia and their carers developed by Improvement Scotland / Right Decision Service
  • Grants and DiscountsOnline information on grants and discounts available to carers.
  • The Herbert ProtocolFollowing its introduction in Scotland, the Hebert Protocol has been used many times to trace missing people with dementia and return them home. It is another example of how emergency and care services are working together to keep those with dementia safe.
  • Changes in care – a stay in hospitalThis resource gives information on preparing for a hospital stay.
  • Planned Date of DischargeInformation on what happens when someone with dementia goes into hospital.
  • Preparing to leave HospitalInformation to help prepare for leaving hospital.
  • Home First – NHS InformWhen your medical treatment is finished, the best place for you to recover is at home. This is known as the Home First approach. Home First brings together different types of support to allow you to recover at home. This will help to maintain your ...
  • Tips for Eating and DrinkingTips on eating and drinking for people with dementia and their family and friends
  • Eligibility Criteria for Adult ServicesEligibility Criteria for adult social care services in West Dunbartonshire including and easy read version.
  • Dementia StrategyThe Scottish Dementia Strategy 2023, called Everyone’s Story outlines the priorities for dementia policy in Scotland.
  • National Carers Strategy: Easy ReadAn easy read copy of the Scottish National Carers Strategy.
  • My Life AssessmentHow to access support from West Dunbartonshire Health and Social Care services
  • What is dementia: Easy Read FactsheetWhat is dementia: Easy read factsheet. This easy read factsheet by Alzheimer’s Society is about what dementia is and how it affects people. It is written for people with learning disabilities.
  • Primary Care – GP DetailsIf you are worried about your memory, you should contact your GP for an assessment. Please find here the contact details for your local health services
  • Power of Attorney and WillsIf a person has dementia, it is important that they organise their financial and legal affairs while they are still able to do so. This ensures that in the future, their affairs will be set up in a way that they have chosen.
  • Care at Home ServicesCare at Home services in West Dunbartonshire provide care in your own home. This section provides information on referrals and assessments made by social work teams.
  • Useful tips on the COVID-19 vaccine for people with dementiaThis briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia.
  • Turning up the volume: unheard voices of people with dementiaThis report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia.
  • John’s CampaignJohn’s Campaign is about the right of people who care for someone living with dementia to be able to stay with them – and the right of people with dementia to be able to have a family carer stay with them. It applies to all ...
  • Dementia Strategy ScotlandThe National Dementia Strategy maintains a focus on improving the quality of care for people living with dementia and their families through work on diagnosis, including post-diagnostic support.
  • Enabling people with dementia to remain at home: a housing perspectiveThis report published by the Housing Learning and Improvement Network sets out the key role housing providers, and in particular social housing providers, can play in supporting people living with dementia to stay independent in the home of their choice for as long as possible.
  • West Dumbartonshire Local Outcome Improvement Plan 2017-27This strategic assessment of the West Dunbartonshire CPP area and locality profiles has been developed to support the identification of priorities and priority communities in line with the requirements around locality planning.
  • Dementia Friendly Housing CharterThis toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
  • How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
  • The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Joint declaration on post-diagnostic dementia care and supportThis joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care.
  • Making your home dementia friendlyThis booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
  • Accessible Information StandardThe Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
  • Living with Young Onset DementiaThis video published by Dementia UK highlights the experiences of younger people being diagnosed and living with dementia.
  • Information about Lewy Body DementiaThis information published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
  • Creating a dementia friendly workplace: A practical guide for employersThis guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.
  • The Sound Doctor: Getting the best out of life with dementiaA series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • Duty of Candour: Information for all providersThis document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
  • No Secrets: guidance on protecting vulnerable adults in careThis guidance document published by the Department of Health sets out a code of practice for the protection of vulnerable adults in care.
  • Pain in People with Dementia: A Silent TragedyThis report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
  • 10 Top Tips for supporting carers of people living with cancerThis guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.
  • Wearing glasses with dementia factsheetThis factsheet discusses the issues that people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers, and professionals.
  • Cracks in the pathwayThis report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
  • Improving the delivery of adult diabetes care through integrationThis report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.
  • Telehealth and Telecare AwareThis online information portal provides a news and information service for people interested in telecare and telehealth.
  • Better care for older peopleThis online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • Continence Product AdvisorThe Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
  • Improving cancer patient experience: A top tips guideThis guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.
  • Cancer information factsheetsThese factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
  • Making your home a better place to live with dementiaThis briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
  • Duty to Care? Supporting and involving unpaid carers of people at the end of lifeThis resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.
  • Initial review following diagnosisThis guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
  • The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • Virtual Hospital modelling toolThe Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.
  • Thinking Ahead: a planning guide for familiesThis guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
  • Diabetes care pathwayThis NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
  • Diabetes Risk ScoreThe Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
  • Building dementia-friendly communities: A priority for everyoneThis report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.
  • Assistive technology – devices to help with everyday livingThis factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
  • Dementia: Finding housing solutionsThis report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
  • Making a Difference in Dementia: Nursing StrategyThis nursing vision and strategy for dementia care, published by the Department of Health, makes clear that every nurse can make a difference to the care of people with dementia.
  • Handy guide to selecting a care homeThis guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
  • Supporting people with dementia at homeThis training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
  • Hospital 2 Home resource packThis resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.
  • Ten tips for communicating with a person with dementiaThese top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
  • Age, Home and Community: A Strategy For Housing For Scotland’s Older People 2012-21This strategy presents a vision for housing and housing-related support for older people, the outcomes we want to achieve and a framework of actions we will take.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaThis factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • Service specification for dementia: better care at home, and in care homesThis specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
  • Optimising treatment and care for behavioural and psychological symptoms of dementiaThis best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
  • This is me'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.
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Services